
Photo: www.virginiamason.org
There are angels on Seattle’s Capitol Hill. They work at Bailey-Boushay House. Bailey-Boushay was founded to care for AIDS patients; they now provide care for people with varying diagnoses. I am bringing this story to my little soapbox today because we’ve had first-hand experience with Bailey-Boushay.
There is no easy way to say goodbye to a loved one. Bailey-Boushay goes out of their way to provide excellent care for their patients, and to support the friends and family members who need that care and nurturing as well. It seems their funding is jeopardized as the result of our state’s revenue issues.
http://www.seattlepi.com/local/404025_Bailey20ww.html
Last week at the Bailey-Boushay House, Shelley Anderson met some friends for lunch, did a little meditation, and worked on a quilt in zingy rainbow sherbet.
She also met with people who helped her feel better about her homelessness, HIV infection and recovery from cocaine and alcohol abuse. She saw a nurse for her daily pills for anxiety, arthritis, a MRSA infection and heart condition.
“Without Bailey, without the nurses, I bet at least half of us wouldn’t be here,” said Anderson, a feisty, pixie-ish 50-year-old client of Bailey-Boushay’s outpatient services.
“I would be dead, and that’s a fact. It’s literally a healing machine.”
But the prominent Madison Valley facility — renowned as the country’s first skilled nursing home designed and built for AIDS patients — is facing a funding crisis that may force the closure of its outpatient program.
The vast majority of the program’s funding comes from the state, which is now facing a $9 billion shortfall. Separate from Bailey-Boushay’s nursing home, the outpatient program serves 200 HIV and AIDS patients with mental illness, addictions, a history of homelessness and other challenges.
“They have histories of being on the periphery of society, in one way or another,” said Brian Knowles, the executive director of Bailey-Boushay, which is managed by the Virginia Mason Medical Center.
We lost our uncle’s partner, Stephen, to complications of AIDS in the mid-90’s. Out of respect for his birth family, I am deliberately vague on identifying information.
I could never express to another person who hasn’t gone through this what it’s like to know your loved one will not get better, and you don’t have the resources to take care of him properly. Stephen went to Bailey-Boushay. We are grateful still that he had the option.
If someone you love has ever died in a hospital, you probably remember the fact there were rules. Couldn’t sleep in the room. Couldn’t spend more than a limited amount of time in the room with them, either. Personal items were discouraged. Most of all, you dealt with doctors, who had a varying degree of impatience or lack of compassion. My mom was in a local hospital for almost three weeks before her death in 1991. The nurses were very kind. I wish I could say the same about her doctors. One of them told me taking care of my mother was “wasting his time”. After all, he could be treating someone who would actually recover. (That was when I discovered that yes, it was possible to fire a doctor.)
When The Dauphin and I went to visit with Stephen at Bailey-Boushay, there were few rules. He could have his things around him, like the colorful afghan one of his family members crocheted for him, the music he liked, and photos from loved ones where he could see them. We could bring in favorite foods that might tempt his almost-nonexistent appetite. He had his own room, so visiting didn’t bother anyone else. We could come and go as we liked. We spent more than a few nights sleeping on the couch in his room. After all, up till the end, Stephen was lucid. He also had a very dark sense of humor. (I was busy at the office, and couldn’t make it for a couple of days. I walked into the room to hear Stephen say, “I thought you were dead.”) Mostly, we were treated as family. They helped us as much as they cared for him. We could go to the office without worrying that he was alone, that he’d had his medications, and someone was with him always. He wasn’t an afterthought, or just another person taking up their time. He was treated with dignity. He was allowed to spend his last days in the care of those who were not afraid of or repulsed by him and by his diagnosis.
I can’t say enough great things about Bailey-Boushay. Our experience with them remains overwhelmingly positive. To die in America usually means being hooked up to every machine known to man, lots and lots of medications that render you unable to communicate, and the whole scenario is less than real. The end, for him, was peaceful. We sat with Stephen for awhile after he was gone. We told him we loved him one more time, that we hoped he was in a better place, out of pain, and hopefully, there was plenty of barbecue there. Mostly, we were grateful for the opportunity.
I realize that a budget deficit the size of Washington’s requires some very hard decisions to be made. I also realize that there has been discussion afoot to divert the hotel/motel/rental car tax revenues to fund the renovation of Husky Stadium. I am quite a sports fan, but to my mind, this isn’t even a question. Fund Bailey-Boushay with a fraction of that money. Their work pays off in the community over and over again.
Also, if you have a little extra money, please consider sending them a donation.
Thank you again, from the bottom of our hearts, to everyone who’s ever worked at Bailey-Boushay. We will always remember you.
-S